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Wednesday, July 10, 2013

Finding Out: My Journey with Endometriosis

Endometriosis.

Not familiar with the word? Don’t worry, I wasn’t either at first. But before I get too much into it, let me rewind a bit and explain myself.

Right before last December, Thomas and I decided that we wanted to get off birth control and start trying for a baby! It was a big decision, one that we had intended to wait a year for. But after four months of marriage, and the consideration that we were starting a family a little later than most, we decided to go for it. It just felt right. We thought, “It will be so great to get pregnant and surprise everyone for Christmas!” Well, little did I know that the baby making process doesn’t follow plans very well. We were so disappointed when we didn’t get pregnant by Christmas, but we remembered that it can take your body a couple of months to readjust after birth control, so we kept trying every month. We got into charting my ovulation, looking up tips to help us conceive faster, and prepared ourselves with plenty of pregnancy tests.

As the months went by and the effects of the birth control pills began to vanish, I began to remember the torture chamber that is my period. I’ve always had really severe cramps and bleeding since I turned, but experiencing it again after birth control was worse than I imagined. Still, I put up with it like I have most my life, and we kept hoping for a baby. Last week however, things took a turn for the worst.

My family was in town for a reunion, and as we were getting ready to meet them at church, my period started. I prepared myself with tampons and medicine like usual and we got to the church. I knew something was wrong when the tylenol I had taken wasn’t working an hour later. I couldn’t control the tears anymore and the pain just got worse and worse. I couldn’t even sit up or see straight. Thomas and I decided to head home and get more medicine as our family looked on with confusion. At home, the extra medicine didn’t help either, and without even thinking about it, I began screaming in pain. Why wasn’t any of the medicine working? I knew I had always had bad periods, but I was always able to take enough medicine to help the pain. At the point, I had taken over twice as much as was recommended, and after a quick prayer we decided to head to the emergency room. Thankfully we were able to get in right away. They gave me a shot for the pain and the doctor told me I had overdosed and that I had a condition called endometriosis. 

Endo what? I had never heard of that before. They ER sent me home with some heavy pain meds, and told me to follow up with my personal doctor. The painkillers helped, but since they were basically narcotics, they knocked me out and made me feel extremely dizzy. After a few days, I met with my doctor and she confirmed what the ER had told me. Endometriosis.

I found out that endometriosis is a condition where the cells/tissue that normally lines the inside of your uterus, grows outside your uterus instead, causing severely painful cramps when having a period. Basically, you bleed where you’re not supposed to, causing you to develop scare tissue. This also can cause blocking of the ovaries, exterior uterus, and fallopian tubes, causing infertility.

Infertility. A word that I had dreaded hearing since we started trying for a baby. I couldn’t believe what was happening. I always just thought that I would get pregnant right away since almost everyone I had ever known was able to get pregnant no problems. Instead, my heart is heavy knowing that I’m the reason we’re having a hard time conceiving. I feel betrayed by my own body, devastated by the fact that this is my lot in life. And although infertility caused by endometriosis does not definitively mean that we won’t ever conceive, I know that I’m in for a long and emotional journey. Since learning of my condition, I’ve found out that women with endometriosis can take several years to conceive, and that they have to endure painful monthly periods in the meantime, with only heavy, debilitating drugs to get them through each cycle. It’s a lot to take in. 

But I’m not giving up hope yet. At this point, all we know is that it’s not impossible, it’s just not likely. That is better than nothing as far as I’m concerned, and a notion that I’m going to hold onto as we chase our dream of adding children to our little family. I know it’s not going to be easy. It’ll will be painful, and sad, and will take a long time. But I’m willing keep trying.

LA.     

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